Saarah Felt Like a Princess When She Sat on Her Throne: Living with a Rare Disease Ehlers Danlos Syndrome (Keds) (Paperback)
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This book tells the story of a brave and daring princess who, despite of her condition, manages to turn her pain into power. Saarah has Ehlers-Danlos Syndrome; a disease that weakens the connective tissues of your body. Because of this condition, she struggles daily with multiple comorbidities such as scoliosis, mast cell activation syndrome, heart issues mitral valve, postural tachycardia, teeth issues, vocal change of voice. Gastrointestinal issues which made her feel left out. Follow the adventures of Saarah at school as she discovers that beauty comes with the strength she holds.